Mayo Clinic HLHS Research
Every 15 minutes, a baby is born with congenital heart disease. If a critical CHD is not detected soon after birth, an infant can die. Thanks to improvements in diagnostic imaging and care, many congenital heart defects can be detected before a baby is born. But not always. The Children’s National Medical Center Cardiology team created a Congenital Heart Disease Screening Program, promoting the use of pulse oximetry to detect critical CHDs soon after birth. Pulse ox is a minimally invasive and painless test performed 24 hours after birth that measures the percentage of oxygen in the blood. Our hope is that all states will make this simple, inexpensive test part of routine newborn screening.Here’s how Children’s National Heart Institute is implementing pulse ox screening throughout the country and saving lives of children born with congenital heart disease.
Source : http://www.childrensnational.org
Congenital heart defects are the leading cause of infant mortality in the United States. CHD affects 1% of all newborns in the U.S. and are responsible for more deaths in the first year of life than any other birth defect.
Truncus arteriosus is rare among these–according to CDC statistics, 0.72 live births in 10,000 have TA. That’s around 300 children each year. Consider that Prentice Women’s Hospital, the hospital where Charlotte was born, delivers more than 10,000 children each year. and you can begin to get a sense of how few children are born with this defect.*
A recent-ish study demonstrated that truncus arteriosus is one of the most expensive hospitalizations of any defect. An average neonatal stay is $192,781. Average hospital stay is around 21 days.* (Recall that Charlotte’s first stay was 49 days; she was above average even then!) Charlotte’s most recent hospital stay, an angioplasty that required only one…
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The Heart Center at Primary Children’s Hospital offers a Fetal Heart Program. We see pregnant mothers when there are concerns that the fetus may have a congenital heart defect or abnormal heart rhythm. We also see mothers that may have any of the following indications: a family history of congenital heart defects, metabolic disorders (diabetes), exposure to teratogens, autoimmune disease, rubella infection, or other concerns their obstetrician may have. Early fetal detection allows for important prenatal planning and education, and expedient management after delivery.
As the Fetal Heart Nurse Coordinator, I meet with families that receive a fetal diagnosis of a congenital heart defect or arrhythmia. When receiving this diagnosis, parents are often overwhelmed and worried. Most families have never heard of a congenital heart defect (CHD) and now their unborn child has been diagnosed with one.
When we meet with…
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